My 14 y/o Has Positive ANA
Question:
> she had a positive ANA as well – but only 1:80. 1:640 is more > disturbing definitely and should *not* be brushed aside. My > daughter’s doc said that young folks often show much lower titres than > adults with the same level of disease. I don’t mean to frighten, just > relaying what was said to me. Do remember this is a GP that told me > this – not a lupus specialist.
I’m concerned that if the ANA profile comes back "OK" that the doctors will say that is the end of it > I pray that your kiddo doesn’t have this but *if* she has lupus or a > similar condition you have good resources and have a jump start on the > problem. > You are both in my thoughts and prayers.
Thanks to both you and BJ for your thoughts and prayers. I’ll be thinking of you and yoru daughter, as well. It’s scary as they get older and start having medical problems. You don’t have as many "rights" in terms of knowing everything that’s going on.
Response:
Hi Gretchen, I know what you mean about what might happen if there is an "OK" ANA. I have always found it easy to be an advocate for my children. It is hard to push a doctor, or insist on something when it involves my own health. I guess you would have to do the charting of any symtoms and put pressure on the doctor to continue testing and follow up. You sure wouldn’t want them to drop the ball on this, just because the ANA is normal at this time. Prayers for you and your daughter. BJ-Sk. Canada "Gretchen" <DGM…@earthlink.net> wrote in message
news:[email protected]… – Hide quoted text — Show quoted text -> > she had a positive ANA as well – but only 1:80. 1:640 is more > > disturbing definitely and should *not* be brushed aside. My > > daughter’s doc said that young folks often show much lower titres than > > adults with the same level of disease. I don’t mean to frighten, just > > relaying what was said to me. Do remember this is a GP that told me > > this – not a lupus specialist. > I’m concerned that if the ANA profile comes back "OK" that the doctors > will say that is the end of it > > I pray that your kiddo doesn’t have this but *if* she has lupus or a > > similar condition you have good resources and have a jump start on the > > problem. > > You are both in my thoughts and prayers. > Thanks to both you and BJ for your thoughts and prayers. I’ll be > thinking of you and yoru daughter, as well. It’s scary as they get > older and start having medical problems. You don’t have as many > "rights" in terms of knowing everything that’s going on.
Response:
On 7 Mar 2004 10:21:28 -0800, DGM…@earthlink.net (Gretchen) wrote: >I’m concerned that if the ANA profile comes back "OK" that the doctors >will say that is the end of it
I totally understand that – fortunately my daughter’s doc is a really cool guy and keeps tabs on her. >Thanks to both you and BJ for your thoughts and prayers. I’ll be >thinking of you and yoru daughter, as well. It’s scary as they get >older and start having medical problems. You don’t have as many >"rights" in terms of knowing everything that’s going on.
rights? we don’t have no stinkin’ rights. My daughter hardly tells me anything about medical stuff anymore… unless of course she gets spooked. But that’s okay ’cause I don’t tell her anything either. 
Response:
hooi bin wrote: > She will be in my prayers and thoughts, I hope she feels better soon. Do > keep us posted on what medication she is currently taking, if she feels > better or not… > Be strong. > Love, bin
<snip> Piggybacking here… Prayers for your daughter Gretchen! I’m glad they caught this early though. It can save a lot of damage in the long run if it is in fact an AI problem. Hugs for you ((((Gretchen))) -Sharon
Response:
I’m sorry about the ANA and other things going on with your daughter. I’m happy that she asked for help…that she recognized something wasn’t right. Both of you girls are in my thoughts. dawn "hooi bin" <ch…@tm.net.my> wrote in message
news:[email protected]… – Hide quoted text — Show quoted text -> I hope she feels better now. > Be strong, bin > "Gretchen" <DGM…@earthlink.net> wrote in message > news:[email protected]… > > My 9th grade daughter just had her ANA come back 1:640 homogenous. > > She’s been treated for depression for about six months and has been on > > 5 different antidepressants. She’s an excellet actress and we > > wouldn’t have known she was depressed if she hadn’t asked for help. > > We decided to have the pediatrician run some tests because the meds > > don’t seem to be doing much, the counselor said it’s a chemical > > depression (meaning therapy alone won’t do it), the psychiatrist is a > > little confused about why nothing is working, and… she sleeps 1 – 2 > > hours after school almost every day. Even a weekend of doing things > > she loves wipes her out, no matter how much fun she’s had. She also > > gets mouth sores, transient joint pain, severe migraines and she’s > > very forgetful. Not enough criteria for a diagnosis, but it sure makes > > me suspicious. The psychiatrist said that if she does have lupus, it > > could explain a lot of what is happening. > > We are fortunate to have a Children’s Hospital in town and all of her > > doctors (pediatrician, neurologist and psychiatrist) are affiliated > > with that. The pediatrician contacted the rheumatologist there and > > they ordered a complete ANA profile and CRP. Since the first ANA took > > 3 weeks to come back, I guess we just sit and wait for now. > > Thanks for "listening." I certainly don’t want her to have lupus, > > especially at this age – but if she’s got it, we’re better off > > knowing. I’m thinking the positive ANA means something, in light of > > the other stuff she has going on. > > Gretchen
Response:
Y’all are so wonderful! Thanks for all your thoughts and prayers! For those of you who have had depression with your SLE, did it respond to antidepresants? I’m just wondering if the lupus is actually affecting her brain, would antidepresants do the trick? Gretchen
Response:
In article <d2a1bf69.0403081430.1a277…@posting.google.com>, Gretchen <DGM…@earthlink.net> wrote >Y’all are so wonderful! Thanks for all your thoughts and prayers! >For those of you who have had depression with your SLE, did it respond >to antidepresants? I’m just wondering if the lupus is actually >affecting her brain,
It can – see http://www.northeastlupus.org.uk/faqshets/faqs05.htm — Andy [Chair, N E Lupus Group] See http://www.northeastlupus.org.uk for more!
Response:
Andy, thanks for the link, it will help me to be stronger advocating for my daughter. We have more information on the new labs, which I am posting as a new post. Gretchen
Response:
I hope she feels better now. Be strong, bin "Gretchen" <DGM…@earthlink.net> wrote in message
news:[email protected]… – Hide quoted text — Show quoted text -> My 9th grade daughter just had her ANA come back 1:640 homogenous. > She’s been treated for depression for about six months and has been on > 5 different antidepressants. She’s an excellet actress and we > wouldn’t have known she was depressed if she hadn’t asked for help. > We decided to have the pediatrician run some tests because the meds > don’t seem to be doing much, the counselor said it’s a chemical > depression (meaning therapy alone won’t do it), the psychiatrist is a > little confused about why nothing is working, and… she sleeps 1 – 2 > hours after school almost every day. Even a weekend of doing things > she loves wipes her out, no matter how much fun she’s had. She also > gets mouth sores, transient joint pain, severe migraines and she’s > very forgetful. Not enough criteria for a diagnosis, but it sure makes > me suspicious. The psychiatrist said that if she does have lupus, it > could explain a lot of what is happening. > We are fortunate to have a Children’s Hospital in town and all of her > doctors (pediatrician, neurologist and psychiatrist) are affiliated > with that. The pediatrician contacted the rheumatologist there and > they ordered a complete ANA profile and CRP. Since the first ANA took > 3 weeks to come back, I guess we just sit and wait for now. > Thanks for "listening." I certainly don’t want her to have lupus, > especially at this age – but if she’s got it, we’re better off > knowing. I’m thinking the positive ANA means something, in light of > the other stuff she has going on. > Gretchen
Response:
She will be in my prayers and thoughts, I hope she feels better soon. Do keep us posted on what medication she is currently taking, if she feels better or not… Be strong. Love, bin "Gretchen" <DGM…@earthlink.net> wrote in message
news:[email protected]… – Hide quoted text — Show quoted text -> My 9th grade daughter just had her ANA come back 1:640 homogenous. > She’s been treated for depression for about six months and has been on > 5 different antidepressants. She’s an excellet actress and we > wouldn’t have known she was depressed if she hadn’t asked for help. > We decided to have the pediatrician run some tests because the meds > don’t seem to be doing much, the counselor said it’s a chemical > depression (meaning therapy alone won’t do it), the psychiatrist is a > little confused about why nothing is working, and… she sleeps 1 – 2 > hours after school almost every day. Even a weekend of doing things > she loves wipes her out, no matter how much fun she’s had. She also > gets mouth sores, transient joint pain, severe migraines and she’s > very forgetful. Not enough criteria for a diagnosis, but it sure makes > me suspicious. The psychiatrist said that if she does have lupus, it > could explain a lot of what is happening. > We are fortunate to have a Children’s Hospital in town and all of her > doctors (pediatrician, neurologist and psychiatrist) are affiliated > with that. The pediatrician contacted the rheumatologist there and > they ordered a complete ANA profile and CRP. Since the first ANA took > 3 weeks to come back, I guess we just sit and wait for now. > Thanks for "listening." I certainly don’t want her to have lupus, > especially at this age – but if she’s got it, we’re better off > knowing. I’m thinking the positive ANA means something, in light of > the other stuff she has going on. > Gretchen
Response:
My daughter’s last two high school years and first year of college were like this. Just constantly exhausted. headaches all the time. not really depressed but "flat" – suspicion is that she is bipolar II. She tends towards "up" and "flat" with only occasional pit dives. Bird would come home and sit on the couch then just crater – if I would have let her she’d have slept from then through the next a.m. recently she got some blood test results that were a little off (low wbcs, high neutrophils) but not enough to worry as yet. Still, we’ll keep an eye on her. She shares too many of the other less-than-great physical traits that I and my sister have. she had a positive ANA as well – but only 1:80. 1:640 is more disturbing definitely and should *not* be brushed aside. My daughter’s doc said that young folks often show much lower titres than adults with the same level of disease. I don’t mean to frighten, just relaying what was said to me. Do remember this is a GP that told me this – not a lupus specialist. I pray that your kiddo doesn’t have this but *if* she has lupus or a similar condition you have good resources and have a jump start on the problem. You are both in my thoughts and prayers. On 6 Mar 2004 05:54:15 -0800, DGM…@earthlink.net (Gretchen) wrote: – Hide quoted text — Show quoted text ->My 9th grade daughter just had her ANA come back 1:640 homogenous. >She’s been treated for depression for about six months and has been on >5 different antidepressants. She’s an excellet actress and we >wouldn’t have known she was depressed if she hadn’t asked for help. >We decided to have the pediatrician run some tests because the meds >don’t seem to be doing much, the counselor said it’s a chemical >depression (meaning therapy alone won’t do it), the psychiatrist is a >little confused about why nothing is working, and… she sleeps 1 – 2 >hours after school almost every day. Even a weekend of doing things >she loves wipes her out, no matter how much fun she’s had. She also >gets mouth sores, transient joint pain, severe migraines and she’s >very forgetful. Not enough criteria for a diagnosis, but it sure makes >me suspicious. The psychiatrist said that if she does have lupus, it >could explain a lot of what is happening. >We are fortunate to have a Children’s Hospital in town and all of her >doctors (pediatrician, neurologist and psychiatrist) are affiliated >with that. The pediatrician contacted the rheumatologist there and >they ordered a complete ANA profile and CRP. Since the first ANA took >3 weeks to come back, I guess we just sit and wait for now. >Thanks for "listening." I certainly don’t want her to have lupus, >especially at this age – but if she’s got it, we’re better off >knowing. I’m thinking the positive ANA means something, in light of >the other stuff she has going on. >Gretchen
Response:
Hi Gretchen, I am sorry to hear that nothing seems to be working for your daughter. It is a worry, isn’t it? You are right. It is best to find out what is going on, even if it isn’t good news. At least someone will know how to treat her. As you know, there are lots of things that can cause a positive ANA. Perhaps it is something that can easily be handled. I will be thinking about you and your daughter. I know you will update us on any new findings. BJ-Sk. Canada "Gretchen" <DGM…@earthlink.net> wrote in message
news:[email protected]… – Hide quoted text — Show quoted text -> My 9th grade daughter just had her ANA come back 1:640 homogenous. > She’s been treated for depression for about six months and has been on > 5 different antidepressants. She’s an excellet actress and we > wouldn’t have known she was depressed if she hadn’t asked for help. > We decided to have the pediatrician run some tests because the meds > don’t seem to be doing much, the counselor said it’s a chemical > depression (meaning therapy alone won’t do it), the psychiatrist is a > little confused about why nothing is working, and… she sleeps 1 – 2 > hours after school almost every day. Even a weekend of doing things > she loves wipes her out, no matter how much fun she’s had. She also > gets mouth sores, transient joint pain, severe migraines and she’s > very forgetful. Not enough criteria for a diagnosis, but it sure makes > me suspicious. The psychiatrist said that if she does have lupus, it > could explain a lot of what is happening. > We are fortunate to have a Children’s Hospital in town and all of her > doctors (pediatrician, neurologist and psychiatrist) are affiliated > with that. The pediatrician contacted the rheumatologist there and > they ordered a complete ANA profile and CRP. Since the first ANA took > 3 weeks to come back, I guess we just sit and wait for now. > Thanks for "listening." I certainly don’t want her to have lupus, > especially at this age – but if she’s got it, we’re better off > knowing. I’m thinking the positive ANA means something, in light of > the other stuff she has going on. > Gretchen
Response:
My 9th grade daughter just had her ANA come back 1:640 homogenous. She’s been treated for depression for about six months and has been on 5 different antidepressants. She’s an excellet actress and we wouldn’t have known she was depressed if she hadn’t asked for help. We decided to have the pediatrician run some tests because the meds don’t seem to be doing much, the counselor said it’s a chemical depression (meaning therapy alone won’t do it), the psychiatrist is a little confused about why nothing is working, and… she sleeps 1 – 2 hours after school almost every day. Even a weekend of doing things she loves wipes her out, no matter how much fun she’s had. She also gets mouth sores, transient joint pain, severe migraines and she’s very forgetful. Not enough criteria for a diagnosis, but it sure makes me suspicious. The psychiatrist said that if she does have lupus, it could explain a lot of what is happening. We are fortunate to have a Children’s Hospital in town and all of her doctors (pediatrician, neurologist and psychiatrist) are affiliated with that. The pediatrician contacted the rheumatologist there and they ordered a complete ANA profile and CRP. Since the first ANA took 3 weeks to come back, I guess we just sit and wait for now. Thanks for "listening." I certainly don’t want her to have lupus, especially at this age – but if she’s got it, we’re better off knowing. I’m thinking the positive ANA means something, in light of the other stuff she has going on. Gretchen
Response:
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